Stroke Navigation: Investigating navigational support for people living with stroke

Research Framework

Maximising Participation

Overview

This project aims to support Canterbury people and their whānau who live with stroke to better navigate the range of health, rehabilitation, social, and community services that can support them to live well after a stroke. We have engaged a co-design team who are using the principles of Whānau Ora and Enabling Good Lives to explore how best to facilitate navigation and wayfinding support for this population.

The project’s three objectives are as follows:

1. Build relationships and engage a co-design team
2. Describe community services available for people and whānau living with stroke
3. Develop a navigational pathway and implementation plan

Method

Objective 1) We have set up an ethnically diverse co-design team. Participants were contacted through existing networks of the Burwood Academy Trust, the Stroke Foundation, and Whānau Whanake. The co-design team of ten has 8 people with lived experience: 4 Pasifika (including 2 whānau), 3 Māori (including 1 whānau) and 1 European. It also includes 2 researchers.

Objective 2) This included a secondary analysis of 12 transcriptions from a previous project. We used thematic analysis methods to explore the perspectives of the interviewees about the types of navigational and wayfinding support that will best meet their needs and aspirations. Members of the co-design team with lived experience commented on the outcome of this analysis. We held a focus group with CDHB and community service providers. This helped us to build a rudimentary map of the range of and community services that can support recovery and living well after a stroke in the CDHB catchment. We are undertaking content analysis of all relevant public facing information such as patient information leaflets and online service descriptions.

Objective 3) A co-design team workshop explored ideas for a navigational pathway for people living with stroke and their whānau incorporating Whānau Ora and EGL principles.  A thematic analysis of a transcript and co-design materials gathered from the workshop will inform the core principles and modes of delivery for a navigational and wayfinding system within Canterbury that will be developed in a synthesis workshop.

Funding

This project is funded by the Health Research Council (HRC 21/ 1090)

Status of Research

Project Now Complete

Outputs